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Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
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