• American Hemochromatosis Society This organisation provides information and educates the public about hemochromatosis. They publish a newsletter and have an online support group.

• Haemochromatosis Society UK Voluntary organisation for patients in England, Wales, Scotland and Northern Ireland.

• Haemochromatosis UK Light hearted and simple terms in explaining the serious disease of haemochromatosis.

• Hemochromatosis Information Society Offers information about the symptoms and treatment of hereditary hemochromatosis.

• Irish Haemochromatosis Society Irish volunteer organisation to support people with haemochromatosis and promote the disease.

• Iron Disorders Institute Non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis.

• Iron Overload Diseases Association Information on hemochromatosis. Covered are the accepted protocols for diagnosis, treatment, maintenance and diet.

• Iron Overload Disorder Support Forum Support group for those affected by hemochromatosis