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Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Children's Medical Research Foundation
A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.
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