• Canadian Marfan Association Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

• International Federation of Marfan Syndrome Organizations A global information center providing links to Organizations around the world.

• Jeanette Navia's Marfan Life Website Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

• Living With Marfans This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

• Marfan Association UK The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

• Marfan-List Information about an e-mail mailing list. Also includes links to other online support groups.

• National Marfan Foundation Providing accurate and timely information about the disorder to patients, family members and physicians.