• Carnitine Palmitoyltransferase Deficiency Newsletter for health care professionals and patients interested in CPT deficiency, a mitochondrial disorder of fat metabolism that causes muscle breakdown.

• Children Living with Inherited Metabolic Diseases (CLIMB) national umbrella organization working on behalf of children, young people, and adults affected by metabolic diseases.

• Children's PKU Network working to maintain an agenda of public awareness, education, and direct assistance to help people with PKU and other metabolic disorders.

• Homocystinuria Support provides information about the illness, recommended diet, and links.

• Nonketotic Hyperglycinemia hyperglycinemia (nkh) parent network.

• Parents of Galactosemic Children, Inc. Information about galctosemia and a resource for families living with galactosemia.

• Spiral Notebook: Carnitine Palmitoyl Transferase Deficiency a newsletter about a rare genetic disorder of fat metabolism that causes muscle breakdown.

• United Mitochondrial Disease Foundation To promote research for the cure and treatment, and to provide support to families.