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American Foundation for Urologic Disease

http://www.afud.org/
Anaphylaxis Foundation and Anaphylaxis Network of Canada

offers product alerts and registry for product recalls and research and advocacy data.

http://www.anaphylaxis.org/
Beryllium Support Group

information about chronic beryllium disease (CBD).

http://www.beryllium.org/
Canadian Bacterial Diseases Network

http://www.cbdn.ca/
Canadian Organization for Rare Disorders

committed to the enhancement of the lives of all persons affected by rare disorders.

http://www.cord.ca/
Children Afflicted with Lymphatic Malformations - CALM

organization of parents and children afflicted with lymphatic malformations. Offers information, support, medical references, and encourages research to improve treatment.

http://www.staycalm.org/
Coeliac Society

U.K. society offers information and advice on coeliac disease.

http://www.coeliac.co.uk/
Dystonia Medical Research Foundation

works to increase an understanding of dystonia through research, awareness, and support.

http://www.dystonia-foundation.org/
Family Caregiver Alliance

info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.

http://www.caregiver.org/
Friends' Health Connection

connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.

http://www.48friend.org/
Global Fund to Fight AIDS, Tuberculosis, and Malaria

works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.

http://www.globalfundatm.org/
Histiocytosis Association of America Virtual Offices

online support for patients with histiocytosis their family and friends.

http://www.histio.org/
Hughes Syndrome Foundation

offers details of antiphospholipid syndrome and its treatment, research, and the foundation.

http://www.hughes-syndrome.org/
International Adhesions Society

http://www.adhesions.org/
International Immunocompromised Host Society

Offering a multidisciplinary forum for scientific and clinical interchange to improve management of Immunocompromised Patients.

http://www.ichs.org/
International Pelvic Pain Society

http://www.pelvicpain.org/
International Society for the Study of Cough

Promotes research in cough and encourages the exchange of ideas and information.

http://www.issc.info/
Irritable Bowel Syndrome (IBS) Self Help Group

including a bulletin board, library, and web ring.

http://www.ibsgroup.org/
Klippel-Trenaunay Support Group

provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.

http://www.k-t.org/
Langer-Giedion Syndrome Association

international support organization for people and families living with Langer-Giedion Syndrome and related disorders.

http://lgsa.net/
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