Healthy Directory, Healthy Living > Diseases and Conditions

Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.

http://www.cafamily.org.uk

Human Growth Foundation

Information about growth-related disorders through education, research, and advocacy. Member driven organization.

http://www.hgfound.org/

Lymphangiomatosis and Gorham's Vanishing Bone Disease

Provides general information and a personal account, including pictures and X-rays.

http://www.gorhams.dk

National Organization for Rare Disorders, Inc.

Information about NORD, its programs, special events and the variety of services offered.

http://www.rarediseases.org/

Tetrahydrobiopterin

Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.

http://www.bh4.org

XLH Network

Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets.

http://www.xlhnetwork.org/

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