• Batten Disease Support and Research Association BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.

• Nathan's Battle Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.

• The Luke and Rachel Batten Foundation Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.

• The Natey Foundation Information for parents and families of Battens victims.