• AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

• Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.

• Changing Faces UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.

• Children's Craniofacial Association Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

• Crouzon's Bridge of Hope Foundation Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.

• FACES: The National Craniofacial Association Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.

• Foundation for Faces of Children Expert information for families and health care professionals about craniofacial conditions.

• Let's Face It USA A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.

• Moebius Syndrome Moebius Syndrome support, information and resource site.

• The Craniofacial Society of Great Britain and Ireland Information about the society, which is a multidisciplinary forum for specialists.

• The New Face Foundation A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.

• XP Support Group UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.